We have provided some materials and resources to help you prepare for meeting with your legislators.

Information about ELSA

The following documents summarize information about the Ensuring Lasting Smiles Act (ELSA).

Download ELSA Issue Brief
Download ELSA Section by Section Summary
ELSA One Pager
Download ELSA FAQ
Download Letter from Organizations Supporting ELSA

Sample Letters to Send to Legislators

Review each of these sample letters to see how four different families personalized their letter and shared their stories.  We have tips on how to tell your advocacy story and practice it for success. 

We also have sample letters for people to use if they have extended family members or friends who are affected by ectodermal dysplasias.

Download Advocacy Template Letter

Leave Behind Materials

In addition to print copies of your personal letter, we recommend that you download and print the following materials to leave with your legislator. They provide more information about ectodermal dysplasias and their challenges and ELSA.

Teeth Are Not Just Cosmetic Flyer

This flyer addresses the main reason that insurance companies give when denying benefits: that teeth are cosmetic.

Download Teeth Are Not Cosmetic Flyer

Advocate for Super Smiles Flyer

This fact sheet outlines key facts about ectodermal dysplasias, the challenge of insurance companies denying benefits and our solution.

Download Advocate for Super Smiles Flyer

Patient Case Studies

This sheet features stories and photos from six families who have congenital anomalies, including ectodermal dysplasias. It depicts their dental journeys and challenges in getting insurance benefits to pay for the medically necessary care.

Download Patient Case Studies

Support for Advocates

Our team is always happy to answer advocacy questions and help you work through the process of reaching out, meeting and following up with legislators about ELSA.

Facebook Icon

The ELSA Advocates Facebook Group is a great way to connect with fellow advocates, ask questions and share successes or challenges. Our staff moderates the group and shares advocacy updates.

Join the Conversation

Our state leads are another great line of support for advocacy questions specific to your legislators. If you would like to be a state lead or want to contact the lead in your state, email Becky Abbott, co-chair of our Family-Driven Advocacy Committee.